Children’s Heartbeat Trust.
Supporting families of children with heart disease in Northern Ireland since 1984.
We work closely with Clark Clinic at the Royal Belfast Hospital for Sick Children to ensure that children with heart disease and their families receive the best care,
Heart defects in children can range from the simple to the complex. As such there are many different types of defect ranging from congenital (present from birth) to those that are acquired later in childhood due to illness, and to those that have arisen due to a genetic syndrome. The good news is that with advances in medicine and technology, many children with heart disease go on to live active, full lives.
Congenital Heart Disease (CHD) is not a single disease but a general name for malformation of the heart, heart valves or major blood vessels that are present at birth, affecting the structure of the baby’s heart and the way it works.
CHDs can vary from mild (such as a small hole in the heart) to severe (such as missing or poorly formed parts of the heart). It is the most common form of birth defect.
CHD is a global condition, affecting around one million new-borns per year and more than two hundred babies are born yearly in Northern Ireland with CHD.
As medical care and treatment have advanced, babies with CHD are living longer and healthier lives. When disease induced limitations are controlled, and compliance to treatment is adhered, many children with CHD have a comparable quality of life to normative/healthy populations.
There are over 44 types of congenital heart disease.
Children’s Heartbeat Trust aim to provide effective, practical support to families of children and young people with heart disease in a variety of practical ways…
There are 10 local family support groups spread throughout Northern Ireland, as well as a seperate Teen’s programme and Teen’s parents group. These groups are set up to provide you with a contact in your local area. All the group organisers are parents who have had a child with heart disease and are happy to have a chat or a coffee with other parents who may need support or simply just someone to listen.
There are also caravans available for families to use in Newcastle and Ballycastle. Look under Caravans for information on how to book a week or weekend.
Keep an eye on our website for details of upcoming events or, for monthly updates, register for our e-zine by emailing Alison at; firstname.lastname@example.org
We provide financial support for a variety of equipment and resources, taking our lead from what the clinical staff require. As such we have funded items from chairs for parents on the ward, to helping fund pioneering tele-medicine in the ‘Heartbeat Suite’.
The ‘Heartbeat’ accommodation above Clark Clinic is also funded through the Children’s Heartbeat Trust. The accommodation is available for parents to use when their child is being treated. This allows parents to stay at the hospital in comfortable surroundings, in what is often a traumatic time, both for the child and the parent. This accommodation is especially invaluable to parents who would otherwise have to travel long distances to and from the hospital.
Clark Clinic Ward 028 9063 2001
Children's Heartbeat Trust
Howard Building, HF12,
Twin Spires Centre,
155 Northumberland St,
Belfast, BT13 2JF
t: +44(0)28 9031 2228
All information used in this webpage has been copied from the Children's Heartbeat Trust website and I didn't intentional make any changes.
If you should wish to find out more about the charity click on the link below.